A family from Shankill are fundraising for transport and a medial fund for their seven-year-old son who has been diagnosed with spastic quadriplegia cerebral palsy.
Herve Rolland was born in October 2011 at 23 weeks. He weighed just 660 grams and was given little or no chance of survival.
Herve’s mother Caroline said it was a very tough time for the family.
“When he arrived in this world at the National Maternity Hospital in Dublin, we were told that he was alive but extremely ill and that it would be second by second, minute by minute possibly hour by hour to see if he would survive.
“When Herve survived through his first night we were absolutely elated but we knew that this was only the start of a very long and difficult road.”
Herve encountered the toughest medical issues caused by his premature birth which included bleeding on his brain in numerous places, breathing and heart problems, among a long list.
Despite all of that, Herve was getting a little stronger each day, but at 16 weeks he became seriously ill again and was not expected to make it through.
He had a lack of oxygen to his brain causing lasting damage. But once again, he amazed everyone and pulled through.
Caroline said: “We always call Herve ‘our little fighter’ due to the fight he has had, and will always have, to survive from the moment he was born.”
Herve is now seven years old and was diagnosed with spastic quadriplegia cerebral palsy at the age of one. He is blind in his right eye, has hearing issues, he has to be fed through a peg feeding tube, he cannot walk or talk and requires 24-hour care.
This month Herve will have his first wheelchair and his family are fundraising to get their first wheelchair accessible car and for his future medical expenses that will most definitely occur.
Caroline told Dublin Gazette it would make such a difference to Herve and the family.
“We are so lucky to have Herve but it has not been an easy road for any of us.
“Financially having a child puts pressure on you as a parent, having a child with severe disabilities, that pressure multiplies beyond anything you ever think you can cope with.
“To be able to bring Herve to see his grandparents or even bring his grandparents in the car with us would be amazing.
“Any amount that you could spare would make a real difference to us and would help to change Herve’s transport needs for the future.”
Nearly €11,000 of the €38,000 goal has been raised so far.