A LITTLE girl from Finglas is seeking help from the public to fund treatment for her rare illness.
Nine-year-old “little fighter” Megan Farrell suffers from the extremely rare Hypoplastic Right Heart Syndrome (HRHS), which affects the development of the heart.
Despite HRHS having an extremely low survival rate, Megan has battled through and her parents, Aisling and Colm, say she is “one of the happiest little girls you will ever hope to meet”.
Megan also has a break in her airway that was discovered after she was born, which has required her to have a tracheostomy tube from just six weeks old.
Along with the tracheostomy tube, a slow swallow means that she cannot eat normally and is fed through a feeding tube.
The tube is inserted through the throat and requires special training for her carers to manage and maintain because if it becomes blocked, it could cut off her air supply.
Aisling and Colm provide Megan with round-the-clock care with the help of night nurses. However, because her tracheostomy tube could block at any time, thus preventing her from breathing, Megan needs specially-trained tracheostomy nurses who are not always available.
This means that Aisling and Colm must stay up all night with Megan, which is not easy as they have two other young children to look after too.
A Go Fund Me page has been set up to fund treatments and equipment for Megan as she gets older and her condition becomes more severe.
Her parents say that Megan can’t speak, and having also been diagnosed with scoliosis she is unable to walk, but “she can still light up a room with her smile and brings lots of joy to her family and friends”.
Speaking on the page, Aisling and Colm say: “As Megan grows older, her needs become greater and her ailments get worse.
“Simple things like bathing Megan causes excruciating pain to her swollen joints as she needs to be carried upstairs.
“Housing adaptation grants only cover a small portion of the overall cost, so installing a downstairs washroom or bedroom is a huge undertaking. Similarly, a new wheelchair, hoist to get her into and out of bed pain-free and other essential equipment are in constant demand.”
The family have already raised more than €12,000 of their €75,000 goal. If you’d like to make a donation, please see gofundme.com/supermegs.

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