New nurse and research trials made possible thanks to Charlie Bird

by Rachel Cunningham
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The IMNDA (Irish Motor Neurone Disease Association) has begun the process of recruiting an additional clinical nurse specialist thanks to funds raised by Charlie Bird during his Climb with Charlie fundraiser in April. 

The fundraiser collected over €1.7 million raised for those living with Motor Neurone Disease (MND). 

This is the first of many projects that the IMNDA unveiled as part of the “Charlie Bird Development Fund”. 

The objective of the fund is to provide the necessary supports to help those with MND live as independent a life as possible in their own home and within their own community. 

“We are so pleased to announce, thanks to the Charlie Bird Development fund, that we have already started to recruit a new nurse specialist. For so long, our nursing team has struggled with large caseloads as well as having to travel long distances to support our clients. 

Professor Orla Hardiman of Trinity College, Dublin, IMNDA campaigner Charlie Bird

“Thanks to Charlie and Claire, we now have the opportunity to provide a clinical nurse specialist in every region and to ensure that our clients receive the highest standard of support they need in their own home. 

“We are also delighted to contribute funding towards a clinical research project into improved treatments for MND, overseen by Professor Orla Hardiman of Trinity College, Dublin,” said Lillian McGovern, CEO, IMNDA. 

The fund will also provide funding for those living with MND who wish to avail of a voice banking service, a respite ‘recharge’ grant for a hotel stay away from home for families, a transport grant to enable clients make their MND clinic appointments in comfort and a caregiver respite grant to alleviate the burden of care felt by many. 

The Charlie Bird Development Fund will enable the association to ensure that these essential services will be ring-fenced for the next five years.

Featured Image: IMNDA campaigner Charlie Bird and CEO of the IMNDA Lillian McGovern hold a check for two hundred and seventy five thousand euro, money fundraised from the “Climb with Charlie” event last April. The money will be used for research into Motor Neurone Disease.

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