Tuesday, June 18, 2019
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Relief for families of Clondalkin and Rathcoole boys as “miracle drug” Spinraza approved by...

The HSE will fund the drug Spinraza for treatment of spinal muscular atrophy, a muscle-deteriorating disease which affects 26 children in Ireland.

Joy for Rathcoole and Clondalkin families as miracle drug gets green light

Local parents who never gave up hope on a brighter future for their children have received the most wonderful news.

Curran makes impassioned Dail plea for local children with SMA

Local TD John Curran yesterday called on Health Minister Simon Harris to urgently authorise the provision of a life changing drug for children...

‘These children cannot be denied drug indefinitely’

Ireland is in the minority for providing a life-saving drug to those who desperately need it. This is according...
Sam Bailey's parents say a new miracle drug could improve his quality of life

Local family call on Minister to make miracle drug available

A Rathcoole family are calling on the Health Minister to make a drug available that could drastically improve their son’s quality of life. Fiona and...